I need someone to please take over my blog ME Pain and People Matter. I am not well enough to post the importance of quality of life for patients with ME via proper pain relief. Dr Jones agreed during COCA cola call 8/11/12 emergency preparedness for ME patients "Pain is a symptom that needs to be treated". I asked about the MEICC and under treatment of pain in women and to look at the suicides with this disease. I am not well enough to learn the computer to properly maintain this site but hope one of my advocate friends can!
Love, Peace and Happy Holidays, g gbettor@gmail.com
I can't write a blog. I just realized I posted this on a blog I read, not the one I tried to start. PAINS.org has a site that is organized and advocates for patients in pain. I just found out about it. Very professional for medical and patient community. I am going to check it out and see if ME is included as a disease with debilitating pain. I never want another ME patient to hear "you have CFS, that doesn't cause pain, it must be something else" from a pain "specialist'. Thanks for the emails and messages of support for my attemped blog. Thank you CFS Central for your awesome blog. Sorry for the way my post was made under comments in your blog. I just thought my comment would only be on mepainandpeoplematter.blogspot seriously technically challenged. Obviously better if I don't try to blog until skills and health improve.
Love, peace and better health with less pain, g gbettor@gmail.com PS the main focus has to be on stopping the IOM! 20+years of not being able to be me because of ME (myalgic encephalomyelitis). HHS stop wasting money on a "new definition", when we already have the clinicians agreed upon CCC. Why more delays? We have already suffered far too long. Thanks to our government officials in Congress and the internet; you can't get away with this ridiculous waste of tax dollars. I hope the truth is brought out in March in San Francisco at the IACFSME. Insurance companies blatant disregard for so many with misdiagnosed depression, ignoring science and biomarkers, having the CDC post harmful, inaccurate toolkits will be coming to a swift end when the international comitee embarrasses the HHS for their continued lack of support to the researchers that have tried to help us for decades.
I need someone to please take over my blog ME Pain and People Matter. I am not well enough to post the importance of quality of life for patients with ME via proper pain relief. Dr Jones agreed during COCA cola call 8/11/12 emergency preparedness for ME patients "Pain is a symptom that needs to be treated". I asked about the MEICC and under treatment of pain in women and to look at the suicides with this disease. I am not well enough to learn the computer to properly maintain this site but hope one of my advocate friends can!
ReplyDeleteLove, Peace and Happy Holidays,
g gbettor@gmail.com
I can't write a blog. I just realized I posted this on a blog I read, not the one I tried to start. PAINS.org has a site that is organized and advocates for patients in pain. I just found out about it. Very professional for medical and patient community. I am going to check it out and see if ME is included as a disease with debilitating pain. I never want another ME patient to hear "you have CFS, that doesn't cause pain, it must be something else" from a pain "specialist'. Thanks for the emails and messages of support for my attemped blog. Thank you CFS Central for your awesome blog. Sorry for the way my post was made under comments in your blog. I just thought my comment would only be on mepainandpeoplematter.blogspot seriously technically challenged. Obviously better if I don't try to blog until skills and health improve.
ReplyDeleteLove, peace and better health with less pain,
g gbettor@gmail.com
PS the main focus has to be on stopping the IOM! 20+years of not being able to be me because of ME (myalgic encephalomyelitis). HHS stop wasting money on a "new definition", when we already have the clinicians agreed upon CCC. Why more delays? We have already suffered far too long. Thanks to our government officials in Congress and the internet; you can't get away with this ridiculous waste of tax dollars. I hope the truth is brought out in March in San Francisco at the IACFSME. Insurance companies blatant disregard for so many with misdiagnosed depression, ignoring science and biomarkers, having the CDC post harmful, inaccurate toolkits will be coming to a swift end when the international comitee embarrasses the HHS for their continued lack of support to the researchers that have tried to help us for decades.